Getting A Terminal Diagnosis at 14 & Living Past 30! - Interviewing Lolo

14 Nov 2020
61 229 Aufrufe

Thanks so much to Lolo for being my first guest! Make sure to give her a follow on all of her social platforms:
Her website: www.sittingprettylolo.com/
DEhave: dehave.info/baby/Khnl8iyRPa1TNJrMO-UN-Q.html
Instagram: instagram.com/itsLOLOlove
Twitter: twitter.com/itsLOLOlove
Facebook: facebook.com/SittingPrettyLOLO
Join my exclusive Killer Bee Club at www.patreon.com/mollyburke
Download my Audiobook "It's Not What It Looks Like" on Audible: audible.com/mollyburke
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Facebook: facebook.com/mollyburkeofficial
Twitter: @mollybofficial
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Big thanks to my Patron’s for supporting my content!
Marie Bordeleau
Christian
Traci Cummins
Maddy Duke
Stephen Garcia
Kayla Haysley
Jessamyn
Jess/theyloveyou
Bailey Mae
Ariela Jaylon
Aliah Maiken Helen Johnsson
Ashley Jones
McCay Johns
Caitlin Smith
Sofia Sousa
Ava Bender
Erin Horowitz
Sophie Reynolds
Rachel Carter
Caroline Morgan
Hunter Walden
I'm Molly, a typical sushi, makeup, and fashion loving millennial girl who just so happens to be blind! I was diagnosed with Retinitis Pigmentosa at just 4 years old and began public speaking at age 5. I started just doing motivational speaking, but now I make videos and even model! Even though I can’t see, I know that there are bright spots in everything we face. Let’s find them together. 💕

KOMMENTARE
  • Have any name suggestions for my new series?! Is there anyone you think I should interview in a future episode? :)

    Molly BurkeMolly BurkeVor 2 Monate
    • Momming with migraine is a GREAT channel, check her out! She’d be a great interviewee

      Addison EAddison EVor 19 Tage
    • Jennifer L Armentrout is an author with RP. She is not fully blind yet, but does use different ways to write than most authors.

      theocluvtheocluvVor 25 Tage
    • I like the what Its like idea

      lightpinkmommylightpinkmommyVor Monat
    • This might be too long but Never Have I Ever, But They Have Idk lol

      HavenHavenVor Monat
    • Jessica Kellgren-Fozard ✨✨✨

      frida Arenafrida ArenaVor Monat
  • How about "A Day In the Life of...." and add whatever disability you're covering? Also, you need to know Kelly from RA Warrior. Those of us with autoimmune diseases are experiencing disability in many different ways, yet are mostly overlooked because we don't "look" sick. Kelly is fabulous! And the guy from Winners Winners Don't Quit. I can't remember his name right now, but he is funny and inspirational about people with brain damage. He's amazing.

    Annette JonesAnnette JonesVor 14 Tage
  • Watching your channel among others, I've started to learn that disability comes in all levels. My brother has a mental/learning disability. So compared to that... Compared to working with the Special Olympics... I've always told myself like I'm just a person with bad migraines and headaches. I've cried so many times missing events, being in a dark room, in pain, no sound allowed, puking my guts out... Crying that I can't be normal. Being jealous of people who can plan events and put down payments down on big plans... Feeling like I've got this difference but I'm not THAT bad. Everyone else has it worse etc. Thanks to molly (and others) I've come to accept that I can be disabled without that being derogatory to people with other types or more severe disabilities. That had changed my outlook. Embracing that spoonie life and understanding that it's okay to take more breaks, to not live to the standards of "normal" people around me.

    Wendy LastnameWendy LastnameVor 14 Tage
  • Ty both for this conversation... I became disabled at 32 due to an accident at home and at the time the depression was so much worse than my actual disability because I hadn’t yet accepted my new life. Probably the thing that resonated with me most is when Molly discussed not looking disabled. It’s so hard sometimes when people look at you and actually say you don’t look disabled. Well maybe not today but tomorrow I might be bedridden, I have good days and those are the days you might see me since I am feeling well. Ty again for having these conversations.

    Cindi MilesCindi MilesVor 14 Tage
  • Thank you both bc this video is so full of amazing information & perspective; but also I want to say that watching this channel, and other disabled folks' channels, has done so much for any fears I had surrounding disability. I feel like I can handle anything and live my best life thanks to women like the two of you. So thank you, and I hope you know what a difference you make.

    Paranormal PredicamentsParanormal PredicamentsVor 15 Tage
  • My paralyzed uncle crosses his legs and the nerves will twitch making his foot shake and people look at him crazy

    Brianna GuyBrianna GuyVor 16 Tage
  • Can you talk to joy Ross she is blind too She is completely blonde I would love to see a video with her like that

    Abi ClaireAbi ClaireVor 20 Tage
  • I would really like if you could do after Covid a video about the DEhave Channel being dusty mae she and her mom violet have both Eds ehlers dahnlos Syndrom and a feeding tube but I am pretty sure you would have to go to Australia for that interview, the daughter needs full time care and the mom couldn’t come to the us I think, they are such great disability channel and deserve so much more followers! The daughter Dusty-Mae has also a rare genetic disorder, cerebral.palsy, epilepsy, autism and more that only a few other people worldwide have.

    Cat lover 1987Cat lover 1987Vor 27 Tage
  • I am going to start a DEhave Channel and I love how you are giving us a voice. I'm a Spina Bífida pacient and I would love to do a video with you

    Geeky RulesGeeky RulesVor 28 Tage
  • Is it ok to use the big bathroom stall if I’m claustrophobic

    Dani SchubachDani SchubachVor 28 Tage
  • You definitely can accept your disability and still despise it. I have a chronic migraine that's been going on for over 3.5 years continuously. Some days it's better, some days it's worse but it's always there. I haven't found any benefit or upsides, I'm just in pain and nauseous every single day. If I could go back in time and stop it I would (it was medication triggered). The stigma around migraine doesn't help any of it either. Because migraine isn't "just a little headache" and I can't always push through, and I pay for it when I try to.

    Jenny ValtinJenny ValtinVor 29 Tage
  • Molly, have you considered doing an interview/collab with Martina from Simon and Martina? She has EDS and she's been doing DEhave for over 10 years. Her phrase/brand is "Build A Ladder" and she's just so so so SO amazing. ❤️

    emilieloveskiwiemilieloveskiwiVor 29 Tage
  • "Through the looking glass, with Molly Burke".

    Limonene D-Limonene D-Vor 29 Tage
  • When you are ready to talk to subs if be open to talking to you I have a chronic tumor condition I'm a also a part time wheelchair user due to the tumors you wouldn't believe the judgements I get

    lightpinkmommylightpinkmommyVor Monat
  • Omg! My mom was just diagnosed with ALS in July and I’ve been so scared. On top of that, my dad has terminal cancer and I have EDS. I’m an only child and their caregiver, which is really tough, but I do what I can. I love this series idea, Molly! Looking forward to more!

    loveanddreambigloveanddreambigVor Monat
  • You can name the series My Side: Interviews by Molly Burke

    Summer RaineSummer RaineVor Monat
  • Opening the Dialog with... (etc.)

    amanda ballardamanda ballardVor Monat
    • Example: opening the dialog with the hearing impaired

      amanda ballardamanda ballardVor Monat
  • It would be awesome if you can chat to footless Jo she is amazing 😻

    Johanna HurtadoJohanna HurtadoVor Monat
  • Gallop chillin on the bed during the intro is an actual mood

    HavenHavenVor Monat
  • This was great!! One caveat though, when Lolo said the thing about only using disabled stalls if you’re disabled and have some kind of mobility device- I am invisibly disabled and don’t always need my mobility aids, but I have to use these stalls with the handrails because my back/knee/hip goes out very easily and I may need the rails to get back up. :) I’m always very self-conscious using the disabled stalls lest I be judged because I don’t look disabled.

    nimrodgrrrlnimrodgrrrlVor Monat
  • I just love Lolo’s energy and personality. This is a great idea too and inspiring. And since we can’t help the fact that we have a disability or like how black people can’t help being black because that’s just the way that they were born, you have to embrace it and make the best of it.

    BooilaBooilaVor Monat
  • 4:04 Wasn't that renamed to *physical* distancing? 5:47 I'm already subscribed to Lolo's DEhave channel. 25:56 That reminds me of a school where I had to use a room that was intended for storage to catheterize. 43:06 That shouldn't be a backslash.

    Bert VisscherBert VisscherVor Monat
  • I would love if you could do someone with Narcolepsy and Ehlers-Danlos Syndrome! I have both of them and it is so challenging, but not for reasons people understand. The stigma around both is so intense from both a social experience as well as a medical perspective.

    Rachel MorganiRachel MorganiVor Monat
  • You should interview joy ross she's a blind youtuber 😀😁

    Courtney AnnCourtney AnnVor Monat
  • I'm disabled and extremely under employed because of that. I don't qualify for anything but EBT and with that I MUST be employed in some way, or they get taken away after 3 months out of every 12. My mother who I have to live with is also disabled and gets less than 800 dollars a month total. She also can not save anything even if she had it as if her savings reaches above 2,000 dollars all of her benefits will be taken away. If our rent wasn't lower due to the house being owned by a family friend we likely wouldn't have a home. We are left without central heating and cooling. The only car we have is not working correctly and can stop running entirely any day, and we can not get a new one even a used one is impossible to pay for due to the restrictions on how much money a disabled person can have and still qualify for benifits. Also, when I was able to work a few years ago even though I was disabled I was only scheduled to work about 10-12 hours a week making minim wage and that was due to me being disabled. My entire paycheck went into the gas tank of the car to get to and from work.

    Crystal DCrystal DVor Monat
  • Stockton! I live right near there! Yay

    Katie RobeyKatie RobeyVor Monat
  • You should do a video about Type 1 diabetics. It’s technically a disability although very few people in the community consider it that. It’s also very misunderstood and poorly represented in media and even in the medical community. Most people assume type 2 when you say diabetes which is dangerous for our lives

    Hayley MarseHayley MarseVor Monat
  • You can call it DisabiliTEA :)

    Marissa MooreMarissa MooreVor Monat
  • Also on the same note as my other comment. I love that Lolo mentioned the bathroom stalls. Guess where the changing tables are in women's bathrooms? Lol. How about we make several stalls!!

    BrewedBeautyBrewedBeautyVor Monat
  • I hope you feature some "invisible" disabilities too. I'm recently post partum and I feel like PPD,PPA and postpartum rage is not talked about enough. I hope some of these are featured.

    BrewedBeautyBrewedBeautyVor Monat
  • Thank you so much for this!! Eye opening.

    Lia RLia RVor Monat
  • By the way, it's slash (or forwardslash is the new alternative term) not backslash for URLs. Although it'll correct itself anyway so it's not super important, it's just something I notice almost everyone say, haha.

    Do The DoDo The DoVor 2 Monate
  • You could name it “The Real Deal” with Molly Burke

    Alina ColumbieAlina ColumbieVor 2 Monate
  • An interview with Lydia X.Z. Brown if possible, please!

    saraquillsaraquillVor 2 Monate
  • So, I watch this, sitting in my wheelchair that I don't need 100% of the time, cross-legged. I laughed a little when Molly talked about her friend who always sits in her chair like that as well, because it really is the most comfortable way for me to sit too, but I've always thought it looked a little weird in the wheelchair. Good to know there's others like me! lol

    JustaMentalNoteJustaMentalNoteVor 2 Monate
  • I have an invisible disability, Chron’s disease. I have encountered a LOT of discrimination in the public world and very much in the work world. I would love to share my story with you if you want to talk about invisible disability.

    Jamie ShieldsJamie ShieldsVor 2 Monate
  • As a person with moderate CIPN (chemo induced peripheral neuropathy), there are times I need a walker and times I don't, so I get the whole invisible disease thing 100%. ... I do have a question though. Lolo mentioned not using the handicap stalls if you don't need them. I disagree with this. If there is a long line of 20 or 30 ladies and only 3 stalls, I disagree they shouldn't use the handicapped stall if there is no one there that needs it. They are handicapped accessible, not handicapped dedicated. Of course, if someone comes and needs to use it, of course let them use the large stall. Am I wrong in my thinking?

    LuAnn M - Crazy Cat LadyLuAnn M - Crazy Cat LadyVor 2 Monate
  • An optimimologist about 2 years ago told me that there was a structure in my eye that didn't look all that great, and that it could cause my peripheral vision to continue to narrow and narrow until I go blind. I saw him recently, and he didn't mention anything about it so I'm not sure what caused him to mention it in the first place and not the second time. My vision did get worse in the distance department, and I think that's at fault of not using the bifocals in my glasses correctly (oopsie)

    Natalia MartinezNatalia MartinezVor 2 Monate
  • You were ignorant without noticing it. Disability stalls are not only for people with big things like a wheelchair or a guide dog. I.g. people with stomas like Hanna witton need them too! Please notice that shops use the big stalls for storage not always for fun. It's economical, especially for smaller ones they have to do it to survive. Notice you have issues, other people have too!

    yellow lionyellow lionVor 2 Monate
  • i like that they both have purple stuff everywhere

    MadelineMadelineVor 2 Monate
  • A Moment with Molly!

    PeacefulMadrePeacefulMadreVor 2 Monate
  • Very interesting. Quick question, if you are disabled and get a social security benefit do they also pay your rent? In the UK although the benefits aren't great we have PIP, which is personal independence payment, there are additional benefits that will pay rent and reductions on certain utilities if qualify. In the same way many of the benefits are means tested and it makes it very difficult to become as privileged as a non disabled person.

    Mike and Tara OliverMike and Tara OliverVor 2 Monate
  • She seems so nice

    Lucía FrauLucía FrauVor 2 Monate
  • Awww love seeing gallop in the back

    Christine WeihbrechtChristine WeihbrechtVor 2 Monate
  • I am also a content creator ánd have RT. Am not blind(yet) and have a sewing channel. Would love to chat with you!!

    Creative Cheers of Fashion Laura FlohrCreative Cheers of Fashion Laura FlohrVor 2 Monate
  • This was so GREAT Molly! I'm so glad to be introduced to Lolo! I hope to see Georgia Rankin on this series too.

    M EM EVor 2 Monate
  • I know you briefly mentioned Rikki Poynter but I really hope you interview her too!!!!

    Liyana ILiyana IVor 2 Monate
  • You should interview Yo Samdy Sam! She does great content on autism :)

    KerryKerryVor 2 Monate
  • What about a simple name like "perspective"

    Danielle KirschDanielle KirschVor 2 Monate
  • Would you ever consider interviewing people with mental/cognitive disabilities? I have ADHD and APD, and although my struggles and coping strategies look way different than those of blindness/terminal illness/chronic illness/etc, they still exist. Whenever I tell someone I have ADHD they’re always so surprised and often don’t believe I actually have it, and I’m like.... ‘Really? I thought it was obvious...’ So many people are under-educated about it and it’s so frustrating to deal with.

    SatiricalSunflowerSatiricalSunflowerVor 2 Monate
  • I love your new series. This was the 2nd video I have seen. This one made me feel I was eavesdropping on a private conversation. I have been a fan of Molly's for a while and now I am following Lolo, Shane, and Hannah. Thank you for doing this series. Suggested title - Other Abled.

    Elizabeth GoldingElizabeth GoldingVor 2 Monate
  • My birthday is JuneTeenth and my name is literally ALLY lol i was born to be an ally ♡ also I have Ulcerative Colitis possibly missed diagnosed and actually have chrons. I have one of the invisible chronic diseases and its really hard to stay happy and sex is zero for me. Also imagine going somewhere about to poop your pants out of no where, no warning, and the place says no public restrooms and even telling them whats wrong with you they still turn you away.

    ally burnettally burnettVor 2 Monate
  • Disabled conversations or Chit Chat with ... Conversations with people like me .

    Celeste SamuelCeleste SamuelVor 2 Monate
  • How about "talk it out" or "saying it out loud"

    My main channel is TododoneMy main channel is TododoneVor 2 Monate
  • Molly thank you so much for this series i love it and am excited for more on this.☺️

    My main channel is TododoneMy main channel is TododoneVor 2 Monate
  • Hey! Do you intend to talk to people who have longterm medical conditions that arent classed as disabilities as well? Stuff like IBS, GERD ect? Love your new series so far! xx

    Alice CorbyAlice CorbyVor 2 Monate
  • ME! ME! I have Spina Bifida and I LOVE YOU I would be so honored to talk with you and tell you about how you inspire me!

    Meg HutsonMeg HutsonVor 2 Monate
  • Please interview with Zach Anner!? I feel both of your humor would just be an amazing video!😅💞

    clansing97clansing97Vor 2 Monate
  • I love this series. We need something positive on youtube

    lc 4lifelc 4lifeVor 2 Monate
  • Name the series, Different Voices, One race

    JI ColouristJI ColouristVor 2 Monate
  • Molly, was the friend who uses a wheelchair because if she stands up, her bones will break have Osteogenesis Imperfecta? If so, which type does she have?

    Nicole CavanaghNicole CavanaghVor 2 Monate
  • Suggestion--The Way I Am. My boyfriend who has leber amaurosis (severe visual impairment) was hit by a car in college. He's 6'4"! You can find some of his life experiences on youtube @michaelgroff. Talk about voices! My boyfriend's voice is the ultimate radio voice but finding a job hasn't been so easy.

    MICHELLE CADDELLMICHELLE CADDELLVor 2 Monate
  • Pleaseeeee do an interview with Sbsk even though they’re both able bodied I feel they do so much to contribute to opening up about disabilities and the family element at different age ranges and backgrounds

    Alyssa TerrazasAlyssa TerrazasVor 2 Monate
  • Strong and powerful and amazing and great life with different challenges and the regular struggle bus

    Madeline Victoria PolkowskiMadeline Victoria PolkowskiVor 2 Monate
  • As a disabled actor who lost a role for not looking disabled and not using obvious mobility aids, I'd just like to put a friendly reminder out there that sometimes people use the accessible stalls without a visible mobility aid. I have Ehlers Danlos and sometimes have to use the big stall so I can use the handle bars to get up and down on bad days. I don't have a walker or a wheelchair but I do still have trouble getting up or down. And sometimes I have braces on under my clothes.

    Jordan Leigh WheatleyJordan Leigh WheatleyVor 2 Monate
  • "interviews with everyday people"

    Madison KerzelMadison KerzelVor 2 Monate
  • Ayyye! Stockton love 💗💗

    Amber JustinAmber JustinVor 2 Monate
  • Two gorgeous queens making amazing, empowering content? Sign me up!

    Kelcie BeanKelcie BeanVor 2 Monate
  • I love this

    Hanna PlichtaHanna PlichtaVor 2 Monate
  • My mom has been in a wheelchair due to a CVA since 2002 and it's sad how unadapted the world is to wheelchair users. I live in Belgium in a coastal town where there's quite a lot of pensioners living (so more people with wheelchairs and walkers) but it's sad how little toilets are accessible in the city center. Of all the many places where you can have coffee or eat something there are only a handfull that have a toilet my mom can use.

    Lorre FlLorre FlVor 2 Monate
  • I have MS, i look perfectly normal 😊 I have a lot of problems that dont show though 🙈

    Lena Samantha GrahamLena Samantha GrahamVor 2 Monate
  • I'm disabled, and SO MANY TIMES people tell me that if they were in my situation, they would kill themselves.. "And you're still so positive, that's so amazing!" Like wow.. Thanks, but I don't EVER want to hear that again.

    JamJamVor 2 Monate
  • I also hate how as a white girl with a disability when I complain or speak out about stuff like using a dressing room I’m treated and considered a “Karen”

    Kera Hoagland-McGeeKera Hoagland-McGeeVor 2 Monate
    • LOL, I am legally blind, but I also happen to be a white woman named Karen. It’s becoming very frustrating to try to express my opinion about my own experiences with discrimination, because I just end up with people saying things like “ok KAREN!” and completely dismissing what I’m trying to say.

      Soling106Soling106Vor Monat
  • As a comment to environmental design I hate how the cross walk buttons are not at a height where my short arms can reach with my wheelchair

    Kera Hoagland-McGeeKera Hoagland-McGeeVor 2 Monate
  • Not to be vain molly but I think I’d be great for this series! I’m 32 with severe ehlers Danlos syndrome type 6 and have scoliosis I’ve lived a crazy life I’m 7 years sober from drugs but still have to be on pain meds I’ve been an extra in several tv show and have experienced so much discrimination you would be shocked.

    Kera Hoagland-McGeeKera Hoagland-McGeeVor 2 Monate
  • I’m living for this! As someone who’s both ambulatory and in a wheelchair I appreciate this video so much!

    Kera Hoagland-McGeeKera Hoagland-McGeeVor 2 Monate
  • SHE'S FROM STOCKTON????????????????????????????? WTF I NEVER SEEN HER AROUND! I'M IN TURLOCK PLEASE BRING THAT POSITIVE ENERGY TO ME PLEASE I'M ONLY 40 MINS AWAY

    Adrienne MarcusAdrienne MarcusVor 2 Monate
  • So excited for this series! Title Suggestion: Community Conversations

    Kaydee ByersKaydee ByersVor 2 Monate
  • You need to interview Anastasia

    Ashley TraversAshley TraversVor 2 Monate
  • Thank you so much for doing this Molly. These videos are so important and urgent. I would love to see a video with someone who's experience of disability is fluctuating, idk if you know of someone who talks about that - it's something I experience and don't often see talked about. Sometimes it can feel like I'm not allowed to call myself disabled because I am sometimes able to do most things and other times much more disabled.

    Niko WeardenNiko WeardenVor 2 Monate
  • "Anchors Away" ...as a name because you are throwing off all the"stuff" that keeps people from learning and growing in their opinions toward the disabled community .,,,throwing off the darkness of the disabled community and shedding light on it..,throwing off anything that might contribute toward the disabled and abled from being equal partners.

    Wendy StephanWendy StephanVor 2 Monate
  • Podcast channel please!

    Erica-_-Erica-_-Vor 2 Monate
  • You should do one with Paige Layle!

    Eliana GarzonEliana GarzonVor 2 Monate
  • The title worried me for a second

    Resting heart rate of panic attack IdekResting heart rate of panic attack IdekVor 2 Monate
  • When’s the Molly Burke Podcast coming?

    Regina P.Regina P.Vor 2 Monate
  • MOLLLLLLYYYYY I could binge this series any day!! Love this so much and the message and awareness you constantly bring to people xxx

    Sungi AchSungi AchVor 2 Monate
  • Manifesting this Micheal B Jordan collab for Lolo !! Universe, do your thing!!

    Sungi AchSungi AchVor 2 Monate
  • BRB... running off to watch Lolo’s channel! This is great conversation though 😍.

    CityLove83CityLove83Vor 2 Monate
  • Let's get curious with Molly

    Moonthurst ProjectsMoonthurst ProjectsVor 2 Monate
  • You should look into collaborating with an autistic youtuber! We as a community are so underrepresented and there's soooo much misinformation

    Kayla AckermanKayla AckermanVor 2 Monate
  • Molly. I know you prefaced this with a comment about how you’ll try not to interrupt, but this interview drove me CRAZY. Lolo had amazing ideas and I feel like you kept cutting her off right when she was about to make a point, and watching your second interview with Shane and Hannah, you keep talking over people! Let your guests hold their own, you have to give your audience a chance to hear their perspective if you’re going to share your platform!

    HaleyAleina1HaleyAleina1Vor 2 Monate
  • you should collab with jessica kelgren-fozard!! she’s so amazing

    Posie PlumsPosie PlumsVor 2 Monate
  • will you be talking to anyone with chronic illness? xx

    Jess CoxJess CoxVor 2 Monate
  • 25:11 or so: when she's talking about the acessible stall she says you can't use it unless you have mobiloty equipment with you. But completly erases invisble disabilties(which is very common.) Some people don't LOOK like they're disabled but still need that stall for the handlebars because of balance issues when standing or various other reasons.

    Birdie PerchyBirdie PerchyVor 2 Monate
  • Loved meeting Lolo!!🤩

    Brynne JewellBrynne JewellVor 2 Monate
  • I have a genuine question, but I feel a little awkward asking, in case people assume I'm being intentionally obtuse. I am plus size, and I typically don't have a problem using the smaller stalls in public restrooms, but I HAVE encountered those where it is made SO narrow (especially based on where the toilet paper dispenser and trash can are attached to the walls) that my hips fill the space and I have no room to maneuver my hand between my legs to wipe properly. ONLY in places where that is the case, is that an acceptable reason to use the accessible stall, in spite of the fact that I am not disabled, and do not attempt to claim my build as a disability?

    Angela LurtzAngela LurtzVor 2 Monate
  • call it "a glimpse" or a glimpse into"

    Jessi SchwenkJessi SchwenkVor 2 Monate
  • As someone who is able-bodied and doesn't have any close friends/family with disabilities, I want to say THANK YOU. This series is great and allows me (and I'm sure others) to gain perspective that opens my heart and allows me to have more empathy for disabled people. You're just so awesome Molly, keep following your heart

    Chloe NChloe NVor 2 Monate
  • Ambulatory wheelchair user here!!! I feel this so hard. I started using my first wheelchair in October 2019 and got my actual wheelchair in December. Idk where I would be without it. My disabilities made me so scared to think I would need one. But I did. Due to my EDS my hips dislocate multiple times when I walk and my kneecaps slip if I lock my legs when standing, my ankles turn deep purple if I stand to long. Due to POTS I went from 5-7 passing out a day to 25-30 and I was hurting myself so bad every time, my HR is upper 100’s and lower 200’s everyday. It’s for my safety but it’s really made my life better. But you best BELIEVE I’ll grab my legs and throw them up on the chair with me. It’s more comfortable. Going through the disability process now, was working but my last day was pretty much on a stretcher 🥺😭 If they could fix something about the ramps if not make them sooooooo hard to get up. Some of those angles, they should have something like on the snow slopes so those who can’t physically push themselves up just need to grab on and let go at the top 😅 Oh and more disability parking spaces!!! At my old job there was 6 spots. I worked with ppl with Diabetes and a lot of them use a placard like I do. Like more spots but bigger spaces too. I can’t tell you how many times I’d have to climb in the passenger seat and take down my chair just to get in or ask a coworker to Move my car for me so I can get in. OH AND WHEN PPL PARK ON RAMPS TO GET THEIR LOVED ONES OUT. Like WTF. Boils my broccoli! 💔😩 Fighting ableism myself internally is hard. My entire life I was sick but never like this. And now I have to try not to be like that. I think that’s the part I haven’t accepted. Also, I have a TiLite Aero Z with Smart Drive. God Bless this aid 🙌🏻💚

    Katarina BushKatarina BushVor 2 Monate
  • What a beautiful girl, her hair is goals

    Kasey WinegarKasey WinegarVor 2 Monate
DEhave